2026 Agenda

8:00 – 8:30          Breakfast and Registration

8:30 – 8:45          Welcome and Opening Remarks – Patient Voice: From Engagement to Influence

8:45 – 9:00          The State of Patient Engagement: Progress, Gaps, and Emerging Challenges

9:00 – 9:35          The Global Policy Landscape: How Policy Shifts, Including Most Favoured Nation (MFN) Pricing, Are Shaping Healthcare Innovation

Panel discussion highlighting the current state of opportunities and challenges for advancing patient engagement, inclusion, advocacy, and patient support.

9:35 – 9:55           Beyond Availability: Understanding the Patient Impact of Drug Shortages and Supply Chain Vulnerabilities

9:55 – 10:15         Break

10:15 – 10:50       From Patient Evidence to Better Decisions: How Patient Voices Shape Reimbursement and System-Level Decision Making

Panel discussion with CDA and pCPA exploring how patients can move beyond participation to meaningful involvement in reimbursement and healthcare decision making. Learn where patient evidence has the greatest impact and where opportunities remain to strengthen patient-centred decision making across the healthcare system.

10:50 – 11:55       Workshop 1*: Where Patient Input is Present but Not Influencing Decisions – Identifying Gaps

Choose 1 of: MFN Policy, Clinical Trials and Access, Patient Trust and Data, System Sustainability

11:55 – 12:45       Lunch – Poster Viewing & Video Interviews Available

12:45 – 1:20         Clinical Research at a Crossroads: Patient Engagement as a Driver of Better Evidence and Better Access

Panel discussion exploring how meaningful patient engagement throughout the clinical research lifecycle can improve study design, recruitment, retention, relevance of outcomes, and ultimately support better evidence generation and equitable access to innovation.

1:20 – 1:45          Patient Voice in Lung Disease – Lessons for Engagement, Access, and System Change

1:45 – 2:20          Creating Conditions for Engagement: Navigating Disclosure, Invisible Challenges, and Support Across Mental Health, Women’s Health, and Chronic Disease

Panel discussion examining the complexities of workplace disclosure, stigma, accommodation, and shared responsibility, and discuss how cross-sector collaboration can foster more inclusive, responsive, and person-centered environments.

2:20 – 3:10          Break and Poster Viewing

3:10 – 4:10          Workshop 2*: What Must Change Now – Patient Voice in Decisions That Shape Outcomes – Identifying Priorities

Choose 1 of: MFN Policy, Clinical Trials and Access, Patient Trust and Data, System Sustainability

4:10 – 4:25          From Insights to Practical Actions: What This Means for You Tomorrow

Key audience reflections from the day to help advance meaningful patient engagement across your work and sphere of influence

4:25 – 4:30          Summary

4:30 – 6:00          Networking Reception

*The workshops will be summarized into an op-ed paper publication after the conference. Patient Inclusion Video Interview Opportunity: Attendees can share brief reflections throughout the day.

8:00 – 8:30

Breakfast and Registration

8:30 – 8:45

Welcome and Opening Remarks

Patient Voice: From Engagement to Influence

 

8:45 – 9:00

The State of Patient Engagement: Progress, Gaps, and Emerging Challenges

9:00 – 9:35

The Global Policy Landscape: How Policy Shifts, Including Most Favoured Nation (MFN) Pricing, Are Shaping Healthcare Innovation

Panel discussion highlighting the current state of opportunities and challenges for advancing patient engagement, inclusion, advocacy, and patient support.

 

9:35 – 9:55

Beyond Availability: Understanding the Patient Impact of Drug Shortages and Supply Chain Vulnerabilities

9:55 – 10:15

Break

10:15 – 10:50

From Patient Evidence to Better Decisions: How Patient Voices Shape Reimbursement and System-Level Decision Making

Panel discussion with CDA and pCPA exploring how patients can move beyond participation to meaningful involvement in reimbursement and healthcare decision making. Learn where patient evidence has the greatest impact and where opportunities remain to strengthen patient-centred decision making across the healthcare system.

 

10:50 – 11:55

Workshop 1*: Where Patient Input is Present but Not Influencing Decisions – Identifying Gaps

Choose 1 of: MFN Policy, Clinical Trials and Access, Patient Trust and Data, System Sustainability

 

11:55 – 12:45

Lunch

Poster Viewing & Video Interviews Available

 

12:45 – 1:20

Clinical Research at a Crossroads: Patient Engagement as a Driver of Better Evidence and Better Access

Panel discussion exploring how meaningful patient engagement throughout the clinical research lifecycle can improve study design, recruitment, retention, relevance of outcomes, and ultimately support better evidence generation and equitable access to innovation.

 

1:20 – 1:45

Patient Voice in Lung Disease – Lessons for Engagement, Access, and System Change

1:45 – 2:20

Creating Conditions for Engagement: Navigating Disclosure, Invisible Challenges, and Support Across Mental Health, Women’s Health, and Chronic Disease

Panelists will examine the complexities of workplace disclosure, stigma, accommodation, and shared responsibility, and discuss how cross-sector collaboration can foster more inclusive, responsive, and person-centered environments.

 

2:20 – 3:10

Break and Poster Viewing

3:10 – 4:10

Workshop 2*: What Must Change Now – Patient Voice in Decisions That Shape Outcomes – Identifying Priorities

Choose 1 of: MFN Policy, Clinical Trials and Access, Patient Trust and Data, System Sustainability

 

4:10 – 4:25

From Insights to Practical Actions: What This Means for You Tomorrow

Key audience reflections from the day to help advance meaningful patient engagement across your work and sphere of influence

 

4:25 – 4:30

Summary

4:30 – 6:00

Networking Reception

*The workshops will be summarized into an op-ed paper publication after the conference. 

Patient Inclusion Video Interview Opportunity: Attendees can share brief reflections throughout the day.